Monday, March 06, 2006

Even though I'm sleep deprived & often grumpy as a result, my perspective has changed...for the better.
Logan is a pretty good baby. He has his fussy times, but really, who doesn't? I am extremley thankful that he is a healthy baby & everything about us is text book normal. Shortly after we discovered that I was pregnant, Bill's sister found out that she was too. We were about 4 weeks apart. A few days after she found out about her pregnancy, one of her really close friends found out that they had conceived as well. So back in June, it was the 3 of us excited to have our babies at the same time. 9 weeks into Bill's sister's pregnancy, she miscarried & needed to get a D&C. It was a difficult time. We were sad for her & also sad for Logan. We thought it would be really cool to have a cousin the same age to play with. She tried again & miscarried after a few weeks again. She is now into her 7 th week in her third pregnancy & things seem to be going well so far.

Bill's sister's friend was induced to have her baby this weekend. Nobody had heard from her. Yesterday we got phone calls from Bill's mom & his sister. They were pretty upset. The baby was born with a birth defect. One of every mothers worst fears. At first we were told in the first call that the baby was missing an ear. Bill & I looked at each other & said "Well, that's not too bad, it could've been a lot worse". Yeah, he's not the perfect little baby that we were expecting, but they can do great things with plastic surgery these days. Then we found out more information in the second call. He was born with Goldenhar Syndrome. Not only was he missing an ear & has no hearing on that side, but he has a facial deformity as well. Now, that is upsetting. This little baby will need many surgeries in his life. They will be able to start at 3 years old. How terrifying for a family, to have their little baby go into the hospital so many times in his few short years of life. I can't even imagine. We don't know the severity of the deformity, but it's not sounding very good. It was mentioned that they would use part of his ribs to reconstruct the one side of his jaw.

I know this baby was meant to be with this family. They are very good people & the mother is a special education teacher. She knows her stuff & is very capable of taking very good care of her new little son. It's just sad. I'm so thankful that we are healthy & happy. This is something that I'm going to think about every morning when Logan is up at 3 am, screaming at the top of his lungs. "Yes, you are up & I'm very tired, but we are healthy".

2 comments:

Avorie said...

Wow.... You are right. We also are really luck to have a healthy baby. I was born with several birth defects and had 9 surgeries as a child. We're very happy that Lilly doesn't have to go through that.

It's interesting how special needs babies are often born to people who seem to least diserve them, but are most capable of caring for them. I graduated high school with a woman who had a baby a couple of years later with downs syndrome (very rare for a mother in her early 20's). As it turns out, she she went to college and planned to spend her life working with down syndrom children. She felt very lucky to have her baby - downs syndrom and all. I can't think of a better mother for that baby.

I have another friend whose baby has asbergers autism. She is the sweetest, most wonderful person on this earth and again, and again, I don't think anyone could make a better mother for that particular child.

Reesh said...

Thanks for reminding us all how lucky we are because I too need to remember that at 3am...